PEKIM stands for Pertubuhan Kebajikan Pesakit Ichthyosis Malaysia. It is the only non-profit, non-government organization that strives to assist the welfare of patients with Ichthyosis in Malaysia. It was registered on 28 March 2011.
There are many types of Icthyosis but the disease is mainly inherited. Ichthyosis skin tends to be very scaly and dry, resembling the scales of fish. Ichthyosis is disfiguring for most patients, causing majority of them to be isolated, having low-self esteem and depression. They are also unable to take part in many activities especially those involving outdoors and heat as they are unable to sweat, causing overheating. Currently there is no cure for inherited Ichthyosis. Due to their appearances, majority of patients with this disease are unable to secure jobs. It is their hope and dreams that Malaysians are able to accept them as part of the society that can contribute to the country’s development.
No. 14, Kampung Kandai,
06500 Alor Setar,
Kedah Darul Aman.